LimbPower and partners secure crucial funding to create Limbformation a website for children and families with limb difference.
Posted by LimbPowerAdmin on Monday 12th March 2018
News Release
12th March 2018
Issued by LimbPower
For immediate release
LimbPower and partners secure crucial funding to create Limbformation a website for children and families with limb difference.
Funded by Starworks, Limbformation will be a website, providing support to children and families living with limb difference. Limbformation will be designed as an easy to use one-stop shop, offering information, resources, links and advice. In addition to children and families, the website will also offer guidance and resources to professionals working with these children, including both those who are born with a congenital limb disorder and those who have experienced an amputation.
It has become clear through research that there needed to be a family-friendly website, with access to all of the required information around coming to terms with limb loss and limb difference and living with limb loss and limb difference. Limbformation will offer a child specific platform offering downloadable information, practical advice to support the child's journey and other useful material. Limbformation will be a practical resource designed to connect all areas of life for a child living with limb difference.
Carly Bauert, Limbformation Project Manager said, “One of the main focuses of this website will be to inform parents as early as the prenatal scans about the charities, resources and services available to help them and their child come to terms with limb loss, limb absence and limb difference. The team want to offer support and empower parents from the moment they first discover their child has a limb difference, and to take a further step in fighting the isolation that many families feel”.
We have a fantastic project team working on this project including staff from three leading Universities, St Mary’s, York and Leeds. We will be utilising the research carried out by Devices for Dignity, through the Starworks Project over the last 18 months to inform and direct the build of this website.
This project will be managed by LimbPower. For further information please contact Carly Bauert at carly@limbpower.comor on 01453 886940.
For more information about LimbPower, visit www.limbpower.com.
ENDS
Notes to editors
LimbPower is the National Disability Sport Organisation that supports amputees and people with limb impairments to reach their sporting potential.
The Charity’s mission is to engage amputees and people with limb impairments in regular and sustained participation in recreational and competitive sport and the arts, to improve their quality of life and aid physical, social and psychological rehabilitation. LimbPower aim to put each amputee and limb impaired person in touch with the right sport and leisure activity for their needs and ability.
Dr Emily Heavey is a health and social care researcher with a track record of researching amputation and living with limb difference. She has special interests in the power of storytelling and using research to educate and empower people who use health services.
St Mary's University is a research university located in Strawberry Hill, Twickenham, in South West London. Working within the School of Sport, Health, and Applied Science, Dr Ross Wadey will make a significant contribution to the design and content of the Limbformation website. He is a Reader in Sport Psychology at St Mary’s University, Chair of the ‘Injury and Rehabilitation Research Cluster’, and a LimbPower Trustee.
Prof Rory O’Connor is Charterhouse Professor of Rehabilitation Medicine and Head of the Section of Rehabilitation Medicine at the University of Leeds. Rory is Lead Clinician and an honorary consultant physician in rehabilitation medicine at Leeds Teaching Hospitals NHS Trust. He is deputy clinical director and rehabilitation theme lead for Devices for Dignity, a MedTech and In vitro diagnostic Co-operative funded by NIHR.
Dr Angel Jimenez-Aranda - Technology Development Manager at ELAROS. Angel has extensive experience developing innovative digital solutions empowering patients and supporting clinical decisions. He will lead the technical development of the portal described in the proposal, including the definition of requirements, description of the architecture, design of conceptual prototypes and development of the final product.
Starworks - is an innovation project managed by Devices for Dignity. A young people’s research collaboration bringing children and families together with key opinion leaders from the NHS, Industry, Clinical Academia and leading National Research Centres.